Congressional Down Syndrome Caucus

“When my husband Brian and I heard the news about Cole, it was most difficult. Every parent has hopes and dreams for their child, Down syndrome is not on the list. It is not what we expected, yet we have embraced Cole as the special gift from God that he is. We are developing new dreams for our son and other children with Down syndrome.”

Cathy, Cole and Brian in May 2007 about a month after Cole's birth

More Information:

My Notes on the Launch of the Congressional Down Syndrome Caucus

Mission of Congressional Down Syndrome Caucus

Goals of Congressional Down Syndrome Caucus

Press Release About Congressional Down Syndrome Caucus

Down Syndrome Links

Mission of Congressional Down Syndrome Caucus

The mission of the Congressional Down Syndrome Caucus is to educate members of Congress and their staff about Down syndrome. The Caucus will support legislative activities that would improve Down syndrome research, education and treatment and promote public policies that would enhance the quality of life for those with Down syndrome.

The Congressional Down Syndrome Caucus will:

Urge relevant authorizing committees to support Down syndrome programs and patient care through letters and testimony.
Hold informational events for Members and staff here in DC to increase awareness of the disorder among Members.
Ensure Down syndrome is adequately addressed in all relevant legislation and regulations.
Continue to build House Congressional Down syndrome Caucus into a sustainable, dynamic political force and informational clearinghouse by increasing membership and activities.
Work with National and Local Down syndrome groups to develop leading edge educational, medical and work related initiatives that support individuals with Down syndrome.
Identify and strike down barriers in the law for person’s with mental disabilities.
Expand opportunities for the Down syndrome population in education, the workplace and society at large.

Goals of Congressional Down Syndrome Caucus

To raise expectations and improve outcomes in education.
To eliminate barriers to economic opportunity in employment and in programs that promotes savings and investment.
To promote and fund research that accelerates the development of effective treatments and therapies.
Promote the translation of Down syndrome research into effective new treatments through interdisciplinary cooperation among the various NIH institutes, the FDA, the CDC and privately funded scientists and clinicians.
To promote inclusiveness for people with Down syndrome.
To help provide family support services and a community of care model.
Advocate for the rights of those with Down syndrome and make sure those rights are being enforced.